EB 1st Global Congress on Epidermolysis Bullosa This ground-breaking meeting will, for the first time, bring together all global knowledge in EB research, . Prevención de Ampollas. Como cargar al bebé: Evite levantar el bebé o niño por debajo de los brazos. En su lugar, ponga una mano debajo del trasero y la otra. Epidermolisis Bullosa distrófica (Niños mariposa) Es una enfermedad caracterizada por la fragilidad de la piel y las mucosas. Quienes la padecen poseen una.

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Having trouble reading this email? View it on your browser. In this newsletter we would like to inform you about a publication on a phase 1 gene therapy clinical trial for patients with RDEB as well as about a recent update and upgrade of the app iscorEB 2. The objective was “to evaluate the safety and wound outcomes following genetically corrected autologous epidermal grafts in patients with RDEB.


All grafts were well tolerated without serious adverse events.

Clinical trials

Some but not all grafts showed improved wound healing as well as type VII collagen expression in anchoring fibrils at the dermal-epidermal basement membrane. To access the full article please click here.

The app iscorEB has been on the market already for three years.

It can be used for research purposes or in regular clinical practice to monitor disease. Patients can use the “patient only sub score” by themselves to monitor changes over time.

EB-CLINET News Publication about Clinical Trial and Upcoming EB Events

Epideemolisis recently upgraded and updated app iscorEB 2. IX Simposio internacional de Epidermolisis Bulosa: The symposium focuses mainly on clinical management and clinical trials.

Clinical management and trials Contact: Please click here for further information and for registration. Practical Paediatric EB for Professionals. They have provided holistic care for over children with EB over many years, and enjoy sharing their experience with like-minded health-care professionals, including paediatricians, dermatologists and nurses.


PEOPLE: Teen with Epidermolysis Bullosa Gets to Attend Prom in Fairytale Evening

Please note that EB-CLINET provides information and news that may be of interest to health care professionals epidermplisis people with EB, but does not recommend or endorse products, or participation in any particular clinical trial. Every effort is made to provide accurate and complete information.

A rare disease like the genetic skin blistering condition epidermolysis bullosa EB requires the pooling of expertise and experience.

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